I hate seizures so much

Such a sad week, Conner’s seizures have become worse. He now is having 3-5, 1-2 minutes grand mals 70-100 infantile spasms a day. He desaturated during his grand mals, and is now foaming at the mouth with these ones. I haven’t needed to give him his emergency med yet but I can tell they are getting worse. It takes him quite a while to breath normal again afterwards. Please keep us in your prayers. We need as much strength as ever right now. Thanks everyone for keeping up with him through his page http://www.facebook.com/HopeforConner  He is so strong..

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5 seizure triggers you haven’t thought of…

5 seizure triggers you haven’t thought of…

Seizure: “A seizure is the physical findings or changes in behavior that occur after an episode of abnormal electrical activity in the brain. The term “seizure” is often used interchangeably with “convulsion.” Convulsions are when a person’s body shakes rapidly and uncontrollably.”

One in 26 people in the United States will develop epilepsy at some point in their lifetime.

Are there things that you can avoid for yourself or a loved one who suffers from seizures? YES!

  1. Sounds.I have found that a lot of people complain of sudden, or loud sounds triggering a seizure. I know this is true because if things get too loud around my son he becomes overwhelmed and ends up having seizures. I resorted to buying my son headphone to block out sound. Here is the link to buy a pair for a child. This is the same pair Conner has that he wears every day. http://funandfunction.com/noise-reduction-ear-muff.html
  2. Extreme temperatures have been made known to actually make seizures come on. We live in a valley and during the Summer it can become extremely hot. Some people have noticed that either very hot or very cold atmosphere can trigger seizures. Have you found this relatable? Maybe try to stay out of that crazy weather silly! J
  3. Light Fixtures. Obviously the most common trigger you have heard or noticed is flashing lights, but did you know fluorescent lighting flashes so fast you can’t realize it but your eyes see it! You will find fluorescent lighting in a lot of stores and businesses. Obviously this is hard to avoid. We got our son special tinted glasses. The effectiveness of wearing a tinted lens depends on both the color of the lens as well as the intensity of the hue of the lens (and therefore the light transmission).  Several studies show that blue-tinted lenses may help reduce the photoparoxysmal response…thereby reducing the number of seizures.  Some patients and their doctors may not realize that this tint can be worn in a contact lens instead of in spectacle lenses. Have your ophthalmologist test your pupils with different shaded colors. Conner’s most effective color is brown/red.
  4. Over Stimulation. Putting more stress on a person with epilepsy can cause seizures for sure. My son will most likely have autism, so he hates water. Whenever I give him a bath he gets stressed and seizes. He is G-tube fed, so whenever I try to feed him by mouth he gets nervous. I try to do everything calmly and slowly ease him into it. The key is to keep track of what triggers the seizures. Everyone is different.
  5. Strong Scents. A year ago my son was relaxing and my daughter came into the living room and sprayed an air freshener. He instantly went into a grand mal seizure. From that point on we have been very careful to never have anything smelly around him. Sometimes it is unavoidable. People wear perfume, or you go into people’s homes and they have plug in’s on every wall…If you seem this may be I have found that if you MUST have smell good things around try essential oils. I have found that these all natural scent’s don’t affect our son! http://www.doterra.com/#/en/ourProducts/essentialOils/singleOils

Please share with me your thoughts and triggers you have found!